Hepatite C...Quoi ?

Dragon Arcimboldo

Les porteurs du VHC n’intéressent personne. « To liver and let die », dit Berne le Suédois avec un humour un peu réfrigérant.

Même le mot « hépatite » donne un peu mal au cœur. Dès qu’on en parle on a déjà les dents du fond qui baignent.

Et puis les hépatites, tout le monde s’en fout. Ce sont les pauvres ou les gens malades qui attrapent des hépatites, les gens normaux, eux, ne risquent rien. Avec une hépatite, tout ce qui vous pend au foie, c’est une cirrhose, la maladie des pochtrons.

D'après Fabrice Olivet 2009


Bref, en ville comme au cimetière, pour éviter les questions embarrassantes et rester fréquentable, mieux vaut faire allusion à des maladies plus correctes et moins stigmatisantes.
Au delà de ces aspects discriminants et des difficultés de communication qu'ils génèrent, l'hépatite C est une maladie méconnue et qui ne suscite que peu d’intérêt car elle tue lentement. De fait le porteur d'hépatite n'est pas vraiment pris au sérieux. Quelques réflexions entendues ici et là pour illustrer ce point :


" c'est une maladie qui se guérit bien. J'ai des patients que je traite depuis des dizaines d'années".
"c'est juste quelques cellules de ton foie qui sont abîmées"
"prend bien ton traitement et ensuite tu n'y penseras plus"
"de toute façon, si on lit les notices des médicaments les effets secondaires sont toujours effrayants"
" 'on voit que ça va mieux que l'autre fois' ! - Oui merci, j'ai juste perdu 15k et ma chevelure, ça doit être ça qui me rajeunit- "


Santé à vous,                                                                Ozias

HCV illness thoughts

My Illness is personal but makes me think wider around. In same time, Illness makes me more selfish than ever but forces me to changes perspectives. I discover a new part of what I am made with: probably proud and a bit asocial. I never liked team sports, clubs and group hunting. Today I can hardly stand in a group and asking for help for my body hurts my pride.

I realize also better what’s life about for me: short so no time to spare without reason. No place for fear, complacency, diversion. I understand now that going far in short time needed to accept what I am and realize the good part of what it carries. The mark of it is that it provides self-esteem in return.

Being ill, I feel like a rotten apple in a fruit basket. My low energy and depression contaminates my close relatives and surrounding. I also avoid proximity to people who are or have been sick. I don’t want to know about their problems. I prefer not to know about other health problems I can have or avoid. I don’t want to concur or discuss about which disease is the most severe, the most painful. I do not stand discussion with ill persons.

 Illness is a lot of manipulations. I am manipulated by my virus other patients can be manipulated by their tumor or whatever else. In return ill people I can see, and even myself, manipulate their surrounding with changes and induced pains. Another consequence of illness is weakness, and so patients get manipulated by his doctors, friends and relatives. This is why I try to follow Boris Vian words:

 “J’ai mal à mon bédane, mais je le dirai pas” …

In the same time,  people must  know that I am changed by the illness. I can of course mimic health during short time buts it is as hypocrite, as it is tiring.  To some extents, illness shows me that everyone is alone. As tell photos of Dijskstra, “not in the sense of loneliness, but rather in the sense that no one can completely understand someone else”.

katarina torsen

If you speak french, please visit the excellent post from Jerry Rubin. It is all about what disease can change in our lives, inside ourselves.

http://hepatite-c.over-blog.com/article-medecine-et-emotions-59845819.html

How are you today ? (2)

Mauvais sang. 

Plus de globules.

Je fuis le soleil, je ne dors plus la nuit et me sens aussi mort que vivant.

Mon corps desséché et osseux aspire à la  jeunesse comme un vampire.

Musique pour ce jour : Fratres Arvo Pärt

How are you today ?

Job on His Dunghill by Albrecht Dürer

Job on his dunghill; Signed J Macau.

Dear John Letter. To my virus.

Dear John,

Even if we have probably been travelling and living together for more than 30 years I was only introduced to you lastly. To some extend I should apologize about my lack of attention and start with kind of ‘pleased to meet you’, but situation is not that simple.

I must admit that you kept discrete, silent and even secret all this time and I recognize here some high standard of education and personality. You are a Number1, silent and with strong mindset.

I utterly appreciated your reserve and modesty that enabled to keep the secret in me without invading anybody in family and relatives. You are so discreet that when you choose me, even the sharpest scientist could not see, neither detect your daily work with my liver.

You let me have a wonderful life where we could experiment sports, world’s finest cooking and fine wines together and without special limitation. Never sick, never down, everyday filled with energy and full of curiosity. Really, not the slimmest thought to you in thirty years.

Always quiet and invisible, your track was detected during a routine check-up. I am almost disappointed to see that a game as subtle as you got trapped by a ‘week-end’s hunter’. I imagined some more heroic hunting story.

Today we are not anymore strangers to each other. I know who you are, what you did, what you can do. Besides perverting the best part of my liver, your apparition messed-up my professional and social life. No place for projects and ambitions now, just hiding and taking care of you and me. ‘Taking care of us’ is so ambiguous: to some extents your presence ruins my life, I want to kill you! On the other hand your discovery brings me back to myself as never before, but is this is a good or a bad thing?

 You are now my master, standing in the driver’s seat. You take me to show another side of life: Hospital where you can meet anything and anyone, the pure dumbness or grace of life, and pain with death. Everywhere you showed me the presence of broken hearts; broken bodies floating all around us. I have not been far on this road yet; I just adapted my agenda and opened my eyes. During all previous travels I forgot visiting these countries and now I wonder if there is some place for me to settle here.  I respect you because you let me live and now you teach me ways to die. Sometime these days it is quite difficult to choose my way between following you and keep going with the usual train of my life. I make the wish that you will keep discreet and ‘easy-going’ during this second part of our road movie.

 I make the wish to drive you out as soon as possible. Bye NOW John,

Ozias

Dragon fighting